Health

NJ officials won’t allow fundraising for son’s muscular dystrophy treatment, dad says

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A New Jersey dad who has accomplished races world wide elevating funds for his son’s muscular dystrophy remedy claims the state’s playing ban prevents him from auctioning off a Mustang for the charity.

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Jim Raffone’s 11-year-old son Jamesy was recognized in 2013 with Duchenne Muscular Dystrophy, a uncommon, however deadly illness that causes progressive muscle weak point, Patch.com reported. That very same 12 months, he and his spouse Karen based Jar of Hope to boost cash for DMD analysis, based on Patch.

Raffone, who lives in Manalapan, has trekked the globe for the trigger, Patch reported, finishing days-long runs and walks by New Zealand, Australia and most lately, from Previous Bridge, NJ, to Washington, DC.

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However the pandemic has put a halt to his fundraising efforts, Raffone mentioned, so he determined to public sale off a Ford Mustang to make up for the hole. He deliberate to promote 1,000 tickets for $100 every to assist assist an experimental remedy that might prolong the lives of kids with DMD, as the typical life expectancy is mid-20s. The experimental research prices $35,000 a month, Raffone mentioned.

State officers, nevertheless, compelled him to cancel the raffle, Raffone mentioned.

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“The State Legal professional Common’s workplace is telling us we are able to’t [raffle the car] … The Legal professional Common’s Workplace says state legislation prohibits on-line playing,” Raffone advised Patch.com.

Jim Raffone planned to auction off a Ford Mustang to help pay for his son's treatment.
Jim Raffone deliberate to public sale off a Ford Mustang to assist pay for his son’s remedy.Fb

Now Raffone is looking on State Senator Samuel Thompson and US Rep. Christopher Smith to assist change the legislation.

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“In New Jersey, you’ll be able to guess on a horse or numerous sports activities occasions, to make a revenue,” Raffone mentioned. “However … you’ll be able to’t purchase a raffle ticket on-line, from a charity, to assist save a baby’s life? What’s fallacious with this image?”

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